Action Mesothelioma Charter
Mesothelioma patients and their families have a right to:
- a speedy and accurate diagnosis, supported by a Multi Disciplinary Team discussion;
- good quality information from a variety of sources available in different media and languages;
- support of a suitably qualified nurse and other Multi Disciplinary Team members throughout their illness;
- be considered for the best possible treatments available with the support and input of a Multi Disciplinary Team;
- have up-to-date advice on benefits and help in applying for them, and receive prompt payment of benefits;
- have legal advice and guidance from a firm of solicitors experienced in mesothelioma claims;
- guidance on end of life decisions and care at home;
- provision of a consistent nationwide service from coroners using a clear and open process with a maximum case length of three months.
- have mesothelioma made a national priority by the Cancer Tsar;
- fund good quality research, alongside other national bodies, on mesothelioma with a view to improving diagnosis, treatment and outcomes for patients;
- support the production of clinical Guidelines on the best practice of diagnosis and management of mesothelioma;
- ensure the Health and Safety Executive vigorously enforce existing regulations on asbestos
- prevent future exposure to asbestos by providing a safe working environment with all necessary equipment to protect employees;
- work with unions and individuals to ensure enforcement of current regulations to safeguard all employees;
- identify all asbestos in their properties and organise its safe removal where practical or necessary when work is being carried out.
Mesothelioma is a malignant lung disease which results mainly from exposure to asbestos. Someone dies every five hours from mesothelioma in the UK. Not just statistics - real people, husbands, wives, sons, daughters, grandmothers and grandfathers, uncles and aunties, friends and lovers....
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